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POSITIVE EXPOSURE
is a not-for-profit, 501(c)(3) organization whose innovative
programs challenge the stigma associated with difference and
celebrates the richness of genetic variation with positive images
and powerful life stories.
The program is a unique
partnership between visual arts, genetics, mental health and human
rights driven by former fashion photographer Rick Guidotti and Diane
McLean, MD, PhD, MPH.
All pictures
are the copyright of Rick Guidotti ©
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RNIB is the
leading UK charity offering practical support and advice to anyone
with a sight problem. We offer over 60 different services for around 2
million people with serious sight problems throughout the country.
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Brooke Fox is an
incredible artist with OCA1 albinism, proving you can do or be
anything you want.........
AFTER TWO PROLIFIC
YEARS as an acclaimed artist in the ever-growing Pop/Rock scene in
Nashville, singer/songwriter Brooke Fox landed in New York City in
Fall 2000. “This young woman is a poet on fire,” said Laurel Boland of
Sensored Magazine. Brooke’s intensely personal lyrics, soaring
melodies, soulful vocals, and earthy acoustic guitar create an
intoxicating blend of musical artistry, ranging from dreamy, jazzy
folk to Carly Simon-like pop to feisty, Alanis Morissette-type rock.
Whether she is performing solo or fronting her eclectic band, Brooke
is equal parts vocalist, guitarist, pianist and storyteller........
You have to check out the site and
better still buy the CD.. |
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The choice of the Knowltons,
why??? coz we know the owner and it is a great radio station with
the best eclectic mix of music you will ever find... check it out!
you will thank us when you do
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| You must go and check out this
talent.... she is great with some great contemporary chilled
music.... a must, be patient as the site can take a little time to
load..... and yes, she has albinism. Keep an eye out for a new page
coming soon called the "chilled out zone"..... |
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Malford
Milligan is a world class blues/soul singer, based out of
Austin, Texas. With his nationally acclaimed band "Storyville,"
he recorded 3 CDs; 2 with Atlantic Records, and 1 with November
Records. He performed on "Austin City Limits" 3 times; twice
with "Storyville," and once with Eric Johnson. Malford Milligan
has also appeared on the Conan O'Brian show. Malford Milligan
has toured with BB King, James Cotton, Edgar Winter, Double
Trouble, Kenny Wayne Shepard, and many more. Malford is now
fronting "The Malford Milligan Band."
Malford has
recorded on more than 30 albums. His new CD, "Rides Again," is
now on sale. So click & go check it out on his site with sound
clips.......
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Brother Ali is
another artist with albinism.... check out the track called "Forest
Whittaker" about his struggles living with albinism. He doesn't
seem to let this bother him at all and he is a great lyricist. Ali's
music ranges from purpose to passionate, yet always soulful and true
to the boastful heritage of our culture. An emcee, producer, host
and overall party-starter.
Straight off the heavy buzz of
his debut 12 inch Room With A View Brother Ali delivers his
highly anticipated full length album Shadows On The Sun. An
emcee, producer and overall party starter, Brother Ali is a student
of Hip Hop's Golden age. Shadows on the Sun has been
crafted with this foundation and Ali's ability to write creative
songs with passion and personality. Produced entirely by ANT and
features guest appearances by Slug. |
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Golden Child website.
A site
dedicated to people with albinism of African ancestry.
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This book is well
recommended, so much so, that Bianca has been associated with the
human section of albinism at the back of the book. It has been
laid out in a very comfortable and easy way. This was
originally geared to educate kids up to Students but due to it
unique approach by Kelly, the author, it is good reading for all
generations. It is now
a 'must show everyone' favourite of the family...
"The
wild facts and eye-popping visuals will encourage children to learn
more about the underlying basic science ... surprisingly substantive
picture book for older reader."
Booklist,
May 2004
"Albino Animals is an informed
and informative picture book about albinism. Captivating colour
photography...enhances this fascinating and straightforwardly
scientific presentation which is especially recommended for
young readers."
Midwest Book Review, May 2004
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If you have Albinism, or
are a parent of a Child with Albinism and are interested in learning
more about Albinism or even sharing your experiences and getting to
meet other people then you are welcome to get in touch with this new
fellowship. Run by
a great team Kim, Toni, Erica, Helene, Michelle, Annette, Jackie &
Nigel covering all the
Australian States between them.
So get in touch and give your
support to the AFA....... |
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Allen
J. Little has set up the Albinism Trust to make connections and
build supportive relationships amongst people with and interested
in, Albinism in New Zealand. Check out the DVD of a progame produced
in New Zealand with the aid of Allen and the Albinism trust with its
members.... very well put together. |
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This
is the new web site for the Albinism Fellowship. It is still being
developed, more and more information
and features will be added. Please visit regularly to keep up to
date with developments.
The
Fellowship is a purely voluntary organisation that aims to provide
information, advice and support, for people with Albinism. We do
that either directly for a person with Albinism, or indirectly
through their parents, families, or the professionals working with
them. The Fellowship has charitable status in Scotland. |
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NOAH is an organisation set-up for albino’s and people who need
help and advice, it publishes a large print twice-yearly newsletter, NOAH News,
as well as many Information Bulletins about albinism. It also maintains an
Internet site that includes public bulletin boards for exchanging information
about albinism. Founded in 1982 in Philadelphia, it is an all-volunteer
organization based in the United States. Their objectives are to provide information and support to
individuals and families with albinism, to promote public and professional
education about these conditions, and to encourage research and research funding
that will lead to improved diagnosis and treatment. |
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The
Low Vision
Gateway |
The Low Vision
Gateway web site was created to be your starting point to access
information on the World Wide Web related to the fields of low
vision and blindness. The purpose is not to present one approach or
bias, but to provide access to all related information on the
Internet.
This is a great
site covering many areas (webmaster) |
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Low Vision Centres
of Indiana! They are a nationally recognized optometric practice that
specializes in vision rehabilitation. |
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Susan Ballis has recently
joined with two other moms in her area to form a non-profit
foundation in the United States, called "The Vision for
Tomorrow". There goal is to provide funding for research,
education and public awareness about conditions causing low vision,
such as albinism and aniridia. They will help a lot of people, so go
check out their web site.... |
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http://snowflake66.typepad.com/ |
Annette has albinism and a
family and hails from Dubbo NSW Australia and she has put this blog
together along with information about her family... go say Hi!! |
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Zara was born on
February 11, 2006, in Australia. Until she is old enough to do so
herself, Rachel and Andrew, their proud parents, will be sharing
their thoughts and experiences of life with Zara and albinism on
this website, so go check it out and say hello...... |
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Jackie, the proud mother of
William from Australia, has put her thoughts and experiences onto a
web site. Well worth a visit to get updated on his progress.
more in Friends Montage |
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Another good
personal website about the growing up of Alana and hailing from good
old Oz. Loads of information and personal thoughts...... worth
checking out.... personal site always are, normally they will give
you a reality check |
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This group
was started and is moderated by Kim with type 2 albinism from
Australia and co moderated by another person with type 1
albinism from the USA! Come have a chat, share stories, support
each other, make friends, get advise and just hang out!
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This is a good
web site for help in the USA, its by Ms. Kathy, she has 30+
years of teaching experience 27+ of which have been with visually
impaired children.
This is a place
for parents and teachers of visually impaired children --where we
can swap ideas and answer each others questions. Classroom teachers
new to having a student with visual impairments in your class for a
section just for you!
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this is a sight cram full of
information on adoption and albinism, it is worth going to check out
a Moms perception of life with a child with albinism, Ellery Claire
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just click the image.... |
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| www.albinosupport.co.uk |
This is Lady
Samantha Robinson website who has 3 children with two having
albinism, this is another look at life within a family and gives you
a chance to see how they cope and handle life with albinism..... |
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www.albinizm.ru/
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We welcome you on site of mysterious,
beautiful and rare people on this planet - Albinos and
parents of albino children's. This site allows to unite
all people and family who was mentioned with this
problem, here all of us we can communicate, solve tasks
in view, ask questions. Communicate, united, get
acquainted..
It is in
Russian mostly but still worth looking at |
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www.albino-alliance.com |
This has been put together
by Brad for all the albino youths around that want a forum of their
own, based in Australia... go check it out |
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Welcome To My World |
Kristina invites you
to look into her world through her web site, with the ups and downs of
life as seen from her perspective.......... |
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Joseph Andrew was
born to Andrew and Sarah on Saturday the 5th December 1998 at 8:50AM and
weighed in at a rather healthy 8lb 1/4oz. Normally, that is all you need
to know when a new baby is born – but from the very start of the
pregnancy and during the first few months, there were a few more facts
to be revealed as far as our new arrival was
concerned............................. |
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Nicole hails from Indiana USA
and has put together a site about her life and dealings with
albinism.... well worth a visit and currently being updated on a
regular basis.
check out
Photo Montage on the Albinism
section of this site for photo's with her beautiful daughter Corrin.....
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http://www.visiontech.svrc.vic.edu.au/index.htm |
Deb Lewis hailing from
Melbourne Australia.... with an informative and helpful web site
for the visually impaired, contacts and a whole stack more and
if they do not have it on the site, you can write in for help
and assistance........ |
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