Credits and Links

POSITIVE EXPOSURE is a not-for-profit, 501(c)(3) organization whose innovative programs challenge the stigma associated with difference and celebrates the richness of genetic variation with positive images and powerful life stories.

The program is a unique partnership between visual arts, genetics, mental health and human rights driven by former fashion photographer Rick Guidotti and Diane McLean, MD, PhD, MPH.

All pictures are the copyright of Rick Guidotti ©

RNIB is the leading UK charity offering practical support and advice to anyone with a sight problem. We offer over 60 different services for around 2 million people with serious sight problems throughout the country.

Brooke Fox is an incredible artist with OCA1 albinism, proving you can do or be anything you want.........

AFTER TWO PROLIFIC YEARS as an acclaimed artist in the ever-growing Pop/Rock scene in Nashville, singer/songwriter Brooke Fox landed in New York City in Fall 2000. “This young woman is a poet on fire,” said Laurel Boland of Sensored Magazine. Brooke’s intensely personal lyrics, soaring melodies, soulful vocals, and earthy acoustic guitar create an intoxicating blend of musical artistry, ranging from dreamy, jazzy folk to Carly Simon-like pop to feisty, Alanis Morissette-type rock. Whether she is performing solo or fronting her eclectic band, Brooke is equal parts vocalist, guitarist, pianist and storyteller........

You have to check out the site and better still buy the CD..

Malford Milligan is a world class blues/soul singer, based out of Austin, Texas. With his nationally acclaimed band "Storyville," he recorded 3 CDs; 2 with Atlantic Records, and 1 with November Records. He performed on "Austin City Limits" 3 times; twice with "Storyville," and once with Eric Johnson. Malford Milligan has also appeared on the Conan O'Brian show. Malford Milligan has toured with BB King, James Cotton, Edgar Winter, Double Trouble, Kenny Wayne Shepard, and many more. Malford is now fronting "The Malford Milligan Band."

Malford has recorded on more than 30 albums. His new CD, "Rides Again," is now on sale. So click & go check it out on his site with sound clips.......

Brother Ali is another artist with albinism.... check out the track called "Forest Whittaker" about his struggles living with albinism. He doesn't seem to let this bother him at all and he is a great lyricist. Ali's music ranges from purpose to passionate, yet always soulful and true to the boastful heritage of our culture. An emcee, producer, host and overall party-starter.

Straight off the heavy buzz of his debut 12 inch Room With A View Brother Ali delivers his highly anticipated full length album Shadows On The Sun. An emcee, producer and overall party starter, Brother Ali is a student of Hip Hop's Golden age. Shadows on the Sun has been crafted with this foundation and Ali's ability to write creative songs with passion and personality. Produced entirely by ANT and features guest appearances by Slug.

This book is well recommended, so much so, that Bianca has been associated with the human section of albinism at the back of the book. It has been laid out in a very comfortable and easy way. This was originally geared to educate kids up to Students but due to it unique approach by Kelly, the author, it is good reading for all generations.

It is now a 'must show everyone' favourite of the family...

"The wild facts and eye-popping visuals will encourage children to learn more about the underlying basic science ... surprisingly substantive picture book for older reader."
Booklist, May 2004

"Albino Animals is an informed and informative picture book about albinism. Captivating colour photography...enhances this fascinating and straightforwardly scientific presentation which is especially recommended for young readers."

Midwest Book Review, May 2004

If you have Albinism, or are a parent of a Child with Albinism and are interested in learning more about Albinism or even sharing your experiences and getting to meet other people then you are welcome to get in touch with this new fellowship. Run by a great team Kim, Toni, Erica, Helene, Michelle, Annette, Jackie & Nigel covering all the Australian States between them.

So get in touch and give your support to the AFA.......

Allen J. Little has set up the Albinism Trust to make connections and build supportive relationships amongst people with and interested in, Albinism in New Zealand. Check out the DVD of a progame produced in New Zealand with the aid of Allen and the Albinism trust with its members.... very well put together.

This is the new web site for the Albinism Fellowship. It is still being developed, more and more information and features will be added. Please visit regularly to keep up to date with developments.

The Fellowship is a purely voluntary organisation that aims to provide information, advice and support, for people with Albinism. We do that either directly for a person with Albinism, or indirectly through their parents, families, or the professionals working with them. The Fellowship has charitable status in Scotland.

NOAH is an organisation set-up for albino’s and people who need help and advice, it publishes a large print twice-yearly newsletter, NOAH News, as well as many Information Bulletins about albinism. It also maintains an Internet site that includes public bulletin boards for exchanging information about albinism. Founded in 1982 in Philadelphia, it is an all-volunteer organization based in the United States. Their objectives are to provide information and support to individuals and families with albinism, to promote public and professional education about these conditions, and to encourage research and research funding that will lead to improved diagnosis and treatment.

The

Low Vision

Gateway

The Low Vision Gateway web site was created to be your starting point to access information on the World Wide Web related to the fields of low vision and blindness. The purpose is not to present one approach or bias, but to provide access to all related information on the Internet.

This is a great site covering many areas (webmaster)

Low Vision Centres of Indiana! They are a nationally recognized optometric practice that specializes in vision rehabilitation.

Susan Ballis has recently joined with two other moms in her area to form a non-profit foundation in the United States, called "The Vision for Tomorrow". There goal is to provide funding for research, education and public awareness about conditions causing low vision, such as albinism and aniridia. They will help a lot of people, so go check out their web site....

Thanks to Trisha Fink our attention was bought to these sites based in the USA. These are very valuable sites.... that give you help and insight to what help you can get and a wealth of information. Here are the three site links:

http://www.ncsd.org
http://www.TheAbleCrew.org
http://www.PeopleResources.org

http://snowflake66.typepad.com/

Annette has albinism and a family and hails from Dubbo NSW Australia and she has put this blog together along with information about her family... go say Hi!!

Zara was born on February 11, 2006, in Australia. Until she is old enough to do so herself, Rachel and Andrew, their proud parents, will be sharing their thoughts and experiences of life with Zara and albinism on this website, so go check it out and say hello......

Jackie, the proud mother of William from Australia, has put her thoughts and experiences onto a web site. Well worth a visit to get updated on his progress. more in Friends Montage

Another good personal website about the growing up of Alana and hailing from good old Oz. Loads of information and personal thoughts...... worth checking out.... personal site always are, normally they will give you a reality check

This group was started and is moderated by Kim with type 2 albinism from Australia and co moderated by another person with type 1 albinism from the USA! Come have a chat, share stories, support each other, make friends, get advise and just hang out!

This is a good web site for help in the USA, its by Ms. Kathy, she has 30+ years of teaching experience 27+ of which have been with visually impaired children.

This is a place for parents and teachers of visually impaired children --where we can swap ideas and answer each others questions. Classroom teachers new to having a student with visual impairments in your class for a section just for you!

www.albinosupport.co.uk

This is Lady Samantha Robinson website who has 3 children with two having albinism, this is another look at life within a family and gives you a chance to see how they cope and handle life with albinism.....

www.albinizm.ru/

We welcome you on site of mysterious, beautiful and rare people on this planet - Albinos and parents of albino children's. This site allows to unite all people and family who was mentioned with this problem, here all of us we can communicate, solve tasks in view, ask questions. Communicate, united, get acquainted..

It is in Russian mostly but still worth looking at

www.albino-alliance.com

This has been put together by Brad for all the albino youths around that want a forum of their own, based in Australia... go check it out

www3.ncbi.nlm.nih.gov/Omim/searchomim.html

Technical updates on genetics are accessible via internet from Online Mendelian Inheritance in Man

Welcome To My World

Kristina invites you to look into her world through her web site, with the ups and downs of life as seen from her perspective..........

Joseph Andrew was born to Andrew and Sarah on Saturday the 5th December 1998 at 8:50AM and weighed in at a rather healthy 8lb 1/4oz. Normally, that is all you need to know when a new baby is born – but from the very start of the pregnancy and during the first few months, there were a few more facts to be revealed as far as our new arrival was concerned.............................

Nicole hails from Indiana USA and has put together a site about her life and dealings with albinism.... well worth a visit and currently being updated on a regular basis.

check out Photo Montage on the Albinism section of this site for photo's with her beautiful daughter Corrin.....

http://www.visiontech.svrc.vic.edu.au/index.htm

Deb Lewis hailing from Melbourne Australia.... with an informative and helpful web site for the visually impaired, contacts and a whole stack more and if they do not have it on the site, you can write in for help and assistance........

FILM:

Information courtesy Jim Haefemeyer, Andrew Leibs, and Matt Smutko

Me, Myself, & Irene photo downloaded from the
home page of Michael J. Bowman.

X-1999 material:
Panel 1 (upper left)-From

Jim Peterson's Seattle Post-Intelligencer X review.
Panel 2 (lower left)-From the

Hinoto page of the "Nightfall X" Web site.
Panel 3 (right)-From

Manga Entertainment's X page.

End of Days photo downloaded from the

Official End of Days Web site.

Disturbing Behaviour photo supplied by Erin Cordonier. Source unknown.

Powder photo downloaded from a Web site that is now defunct.

The Firm, Lethal Weapon, The Princess Bride, Vamp, Stick, Foul Play, The Eiger Sanction, The Life and Times of Judge Roy Bean, and The Omega Man photos obtained from Dr. Vail Reese's

"SKINEMA: Dermatology in the Cinema" site.

~~~~~

MUSIC ARTISTS

JOHNNY & EDGAR WINTER PAGE:

Photo 1 (left)-Downloaded from the "Johnny Winter Tribute" site (now offline)

Photos 2 (right) and 3-Downloaded from the "Ultimate Edgar Winter Fan Site"

Photo 4-From Together: Edgar Winter and Johnny Winter Live (1975)
Photo 5-From Johnny Winter's album, Second Winter (1969)
Photo 6-From Edgar Winter's album, People Music (1996)
All downloaded from the Official Edgar Winter site

Biographical information compiled from the Skyline Music Johnny Winter site

and the "Ultimate Edgar Winter Fan Site"

~~~~~

SALIF KEITA:

Photo 1-From Salif Keita's album, The Mansa of Mali: A Retrospective, downloaded from M. Lafont's Salif Keita Web site

Photo 2-From a film called "La Genèse" done by Malian filmmaker Cheick Oumar Sissoko, downloaded from a Web site that is now defunct

Biographical information based on Janet Planet's article in the online

African Music Encyclopedia

~~~~~

YELLOWMAN:

Photo 1-Downloaded from the "Massive Reggae Site" (Brazil)

Photo 2-From Yellowman's album, Mister Yellowman, downloaded from a Web site that is now defunct

Biographical information compiled from the "Massive Reggae Site" (Brazil) and the Official Yellowman Web site (now offline)

~~~~~

PUBLIC FIGURES

REV. WILLIAM ARCHIBALD SPOONER:

Illustration downloaded from a Web site that is now defunct

Article reproduced from Reader's Digest Magazine, February 1995

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Special Credits

and thanks over the years to

Wilson Brown, Adrian Chisom & all staff, Mr Wall & all staff, Martin Lang

plus Corfe Hills auxiliary teacher Kerrie Trim.

Allenbourn School, Corfe Hills School, UK,

East Dorset Education Authorities, UK, Cedar House,

Keith Ball, Bournemouth College

Albinism Fellowship, NOAH, R.N.I.B. Wimborne Rotary, Dorset Charity Association for the Blind, Princes Trust and many more.....

(check out the links above)

~~~~~

Rose George (Journalist) Rick Giles (Photographer)

The Sunday Telegraph

For their part in the article about Albinism, featuring Bianca and others.

~~~~~

Material with clearly identifiable sources has not necessarily been endorsed for use on this site by those sources. Some of the artists may not even have consciously intended for their subjects to resemble people with albinism. This is designed to be a simple insight & educational look at Albinism in the public eye and has not been produced with any negative intentions

~~~~~




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