Albinism; Bianca's Friends Photo Montage from around the world

*Memo

Thank you for all your photo's thus far, judging by the emails we receive, being able to see all you guys getting on with life and most importantly smiling through it all..... it helps so many people that look at this site, more than you will probably even realise. This was not the original intention of this page but has seem to develop that way, from me, Bianca, Tanya & Carin, Thanks!............ If you want, you can also put your thoughts, feelings, questions and experiences on our forum, look forward to seeing your comments.

....... so to all of you....... enjoy & keep smiling..

Mike (the Dad) Knowlton (04)

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Bianca in Adelaide, Australia with the Alana Tiller & Family		April 2008
	More to follow as we get them........


	Zinnia Kaur Chandigarh India
Zinnia is 16 and looking forward to her career as an actress and taking her MBA... we wish her all the luck in that field


		Annette Ferguson Dubbo, NSW Australia
Now Annette can tell you a thing or to about surviving in 42 c heat and what it is like being an adult with albinism.... check out her website titled "snowflake66 (credit & links page) pictured here with her Noah and Ashley......

	Edy & Yunny Tsurre, Mozambique Africa
	Bevinda (Mum) has sent these pictures taken when Edy is 10, Yunny 8 and Takumy 3 years. Now I am sure Benvinda has many tips on how to keep yourself protected from the sun......

Fiona O'Kane Northern Ireland


	O'Connor Family Kent, UK
Daniel & Katie Now!! Hey... growing up to fast? yep!!		Gary & Una with Daniel when they he was 13, Emily 11 & Katie 4 at the Grand Canyon... hey, is there a height thing going on here, with every one firmly rooted to the ground

Nadine Cockburn Canada		Nadine has a web site of her own and also a wealth of experience of albinism over the years. Bee noticed that she has mastered the art of dying her hair big time....
	Nadine thumbing her way around Europe in 1969... don't ask!

Nadine has had to deal with her albinism during a time when there was not much knowledge out there and certainly no Internet to help her... well done you, you may find her on the forum for advice.


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	Iorio Triplets from Columbia, Illinois, USA
	Mum Amy, has introduced us to her triplets.... sons JT, Tucker and daughter Rylee. Both boys are albino but Rylee is normal pigmented.....	The guys, above at 4+ in preschool and day-care, and Tucker is getting vision services there, all appreciating good care and service from the school....

Growing up fast now. The triplets are now in full time schooling. Tucker has had successful strabismus surgery and may need another but is doing fine. JT is doing fine as well and does not need to see the ophthalmologist any more (yay!) just the assistants.... and guess what, JT is playing soccer and has scored a goal... hey! that's just blown some of the myths away and prove that there is no set rules in albinism, especially in this family. Rylee you may ask, yea, she is just looking cool as ever and getting ready to break a few hearts when she gets older.
	and then even older........ now I am beginning to feel old :o(.
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	Rachael Healy from Glasgow Scotland

Chris, Dad & Mum, Kara sent these in with when Rachael was born 29th Sept, 05 and looking cute or what!!		.......and then time moves on, boy, does time move on


		Hailey from Germany
Hailey with her sis Amy doing the angel bit, Dad Christian proving men can multi-task... huh, don't know what all the fuss is about and Mum Debbie with that look of a job well done........



	Rosaleen Berigan of St Paul, Minnesota USA
Rosaleen born to October 2006 to the proud parents of Bridget & Will and has 2 siblings, Frannie (7), Lucy (3). As we can see confident advertised by the smile from ear to ear.......


	Kalli from Salem, New Hampshire USA
Kalli is seen here with Mum Tricia, Dad Dave along with the proud sisters Kaila and Kiana. Now we are all digging the David Beckham Mohawk, we don't think David Beckhams was as cool as that on the football pitch :o)

James Doran family

Surrey, UK

James is an IT account manager from the UK, with Nicole, his wife they have to boys, Henry & George...... James went through similar experiences to Bianca but hey...... he has come out the other side preeeeettty ok......

...by all accounts!

James said that since his boys have been born, for him, the fact they both have good eye sight and normal pigmentation, it sort of gave him a sense of at last having been given it myself, this was a very positive sense of achievement not in any way negative and from the knowlton gang.... a very good way of putting it....

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Duncan

Lincoln, Nebraska

USA

Proud parents Mark & Laura are just setting out on the road with Duncan born 17th Feb, 2006, loads of fun and surprises for the future eh!....

Not forgetting the exceptionally proud Grandma Pam....

Kurt Hennessy

from

Sydney, Australia

Kurt with Brother James and sister Olivia as he is off to school

Hollywood; here I come...

Anthony Johnson

from

USA

Anthony with his sisters Jordan & Alaina and cousins

just messin....

as they do so well

Anthony with Dad, sisters and not forgetting their guard dog

Minnie Maxumus

not forgetting proud Mum Angela

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hey!!

I did all the work in coming into this world Dad...

Ivan Daniel Lugo

San Juan,

Puerto Rico

proud or what!!

Ivan Daniel born December 2006 with

Mum Sylvia and Dad Ivan

Stephanie & Kimberly Janiec

from

Newark, Delaware USA

Justine Pett

from

England

Say Hi to Stephanie & Kimberly (top) who's photo has been sent in by her ever proud Aunt Sandy. They both attend mainstream school and it goes without saying "doing real good"

Justine is 15 going on 21, hailing from the UK and OCA2. Not much more info at the moment but will update when I get the email

Matthew Moore

from

Las Vegas, USA

Mum Stacie sent these in of son Matthew with brothers Nick & Kyle all piling in with their Dad Adam. Hey! and you thought that bed was reserved for you...... no chance

Adam Thomas with Matthew, Nick & Kyle....

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Ruby Cureton

from

Ruby has just popped onto the scene to say a big Hi to everyone.... with a proud Dad Jamie and Mum Lisa, she is challenging for the "am I cute or what" stakes. Big Sis Robyn looking very comfortable in her new role.

...the rest of the gang

Keven & Alithea Schoborg

Utah, USA

Cheryl a very proud mum of her two "chickens"..... now come on,.... we all give nick names, we called Bianca "Buzzin Bee" on account she would fly around like one..... actually Keven who has OCA, looks as if he is got a Kilt on in the pic to the lower left and to the right, with the other chicken (sis) Alithea

Now we have an updated picture of Keven, just to prove that in a blink of an eye, they will grow so quickly that you wonder where the time went......

Keven @ 7 mths

Davey Zucker

Chicago

USA

Normally I wait till all the photos arrive before I put them up.... but hey!!! if anyone wants to know if people with albinism are happy with their lot.....

Then look at this picture it ooozzzzes confidence...

This emulates in one picture, the feeling you get through out this page.....

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Tess Ballis

Chicago

USA

Tess with sister Izzy & brother Will

Tess appears to quite happy being at her Aunts wedding

Tess at 1 year old (born 2002)

Tess Ballis at the beach, albinism (OCA2)

am I cool or what!

Susan (Mum) & Jon (Dad) proud parents of the Izzy, Will & Tess have sent in these cool pics and is currently in the process of setting up a foundation to help people with albinism in the USA... for more details, check out the links or news pages within this site and go give them your support.....

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Ashley Sarah Hogg

from

London, Ontario

Canada

Albinism, Ashley's impression of Bianca.... :o)

Sherri & Joe Hogg welcomed their daughter Ashley into the world on 7th June, 2006 and already she is trying to do an impression of Bee on the left.......

Duncan

Lincoln, Nebraska

USA

Proud parents Mark & Laura are just setting out on the road with Duncan, pictured here at 6 months, loads of fun and surprises for the future....

we wish them all the best.......

.....pictured with Dad Mark and Pamela the doting Grandma

Hayley Sleek

from

Wooster, Ohio

Nicole and Mitch have their work cut out for them in the coming years.... 3 beautiful girls, Sydney, Olivia and Hayley........ blimey!! my stress levels were high and I only got 2.As you can see Hayley loves the camera.......... and life, all the girls are definitely going to break some hearts when they get older

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Arvaldo Sulistyarto

From

Bekasi, Indonesia

Arvaldo's father Joe has sent in these pictures of him.... showing Arvaldo to be "So Cool" in his designer shades, along with his Mum, Ameiria and little brother Armanda.... as the picture shows below,

......"Chilled out or what"......

Grayson Frazier

Keller, Texas

Pictures copyrighted and by Patty Recca of Studio 3 Photography

Guy & Cyd Frazier have a new son 'Grayson Guy', who was born November 21, 2005, he has a bigger brother 'Chance', who is 20 months older & normal pigmented......

cute or what!

These great pictures are by Patty Recca

Maldonado Family

Jules, Zaf, Taylor, Miguel & Michael

Taylor & Michael

from

Queens, NY, USA

Thanks to Maria Hatzoglou who has enabled us to have an insight to her niece & nephew who are the Maldonado family... Sister Zaf (Mum) & Dad Miguel are the proud parents of Taylor 8, Michael 13 along with young sis Jules 5. Taylor and Michael have been wearing there glasses since they were young and their eyes have shown some improvement of late...... Taylor is, Like Bianca (see sports) into gymnastics these past couple of years and has now moved into an advanced group and is nicknamed "Spidergirl". Michael is in the school band playing drums and a specialist video gamer.... ummm! drum practice at home may test the family resolve from time-time eh! :o)

Joelle Hammett

from

USA

Hey... who says men can't multi-task

A big hello to Joelle; born October 05 and the rest of her family, Mum Diana, Dad Darien and not forgetting big Sis Leina... With only 16 months apart, Mum & Dad have got their hands full to say the least........ We wish you guys all the luck for the future.

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The Shield Family

from

Cincinnati, Ohio USA

Austin, Gary, Bene, Teri, Drew, Amy,

Luke

CONGRATULATIONS AMY!!

Amy got married on Nov. 25, 2005 to Aaron Hildebrand.

A beautiful day and a beautiful Bride.

Amy at her Graduation 2003 with her friend Allie.....

Amy, studying fine arts & Photography with friend Allie.

Luke with Dr Hertle, just before his operation for Nystagmus....

check out the forum for more info

Terri with Austin and a lighter shade of brown.......

Hey, now what's with this hair thing.... Bianca tried to dye it and it came out as anything but the colour on the packet, so Austin, you will have to give up the secret.... now Teri's smile, ummm! all parents are recognising that look of...... "is this a passing phase or a more permanent thing" :o)Anyway Teri, the worry will come when he goes off to Dennison University for psychology..... me thinks a brighter shade of orange, possibly..... naaaa, I'm sure he'll be good

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Annette

from

L-R, James, Annette, Bee, Bette, Sandy

Annette live close by to Bianca in the UK and who's parents Bette & Sandy helped us in the beginning to understand about albinism. Annette has disproved the myth that 2 people with albinism are a 100% guaranteed to produce albino children, this is not the case. Annette & Paul both have albinism but James & Sean have no albinism traits.

Though it must be said that with the genetic makeup of 2 people with albinism, they are more likely of producing children with albinism BUT, is not guaranteed.

Annette is now married to James (Snr) and the boys are growing up to be fine young men.

There will be more on this subject soon on the parents page.......

Annette with Paul

James & Sean

....also, Annette was with Bianca in the documentary on a day in the life of an albino, some pictures and details coming soon....

Ramsey

P.A.

USA

Jennifer and Joey are the proud parents of (I'm going to break some hearts when I get older) Ramsey who entered this world 11th November, 2004, diagnosed as OCA1b at 2 months old... We just hope you can get a licence for those stark blue eyes of his Jennifer :o).... click & enlarge to see what we mean.


	And now old blue eyes has turned 1 year old and we can see the queue of girls forming all ready....

Civanna Grubba

from

Weirton, West Virginia USA

2004 2005

Well Civanna is growing up to be a fine munchkin, I have just been sent updated photos of this fine young lady from her proud parents........

first picture sent to us with Civanna at 15 months old

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Connor

from

Oregon

USA

Hey!..... Here's Looking at you kid

Meet Connor... born 5th jUNE, 2005... already practicing his winking for the girls benefit and getting ready to break some hearts when he gets older. Along with Dad Tyson, Mum Christina and his beautiful sister Aaliyah

Check out more of Connor on the family site, with a good blog for those who have young babies.

Live Long & Love Life

Adam has in the past 2 years dyed his hair as a social experiment, if you know what I mean.... and this helped him in his particular position... and surroundings at the time

ADAM

from

Poland

Adam at 5yrs........

before the dye.........

Gaven

from

Pretoria

South Africa

Gaven, also known as the Admiral and hailing from Pretoria S. Africa, is currently studying Mechanical Engineering at the Potchefstroom University in S. Africa..... a little camera shy but looking cool here. We are hoping to force him into submission and give us some more photo's in the near future...........

Gaven with Richii

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Alana Tiller

from Adelaide

South Australia

Toni, Alana's Mum is a contributor to the forum, so check that out from time to time and Alana has her own website, go to "credits & Links" for the address. They all hail from a place that we as a family would love to emigrate too.........

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Gem

West Midlands

Gem is 18 and a OCA2 with blue eyes, more clearly shown in the enlarged pictures pictured with her Mum, sister Sam and Chris

Jace Armijo

from Colarado

USA

Jace with his brother Myles

Mum Della has sent in these pictures to share with you of Jace with his brother Myles only small versions at the moment but hope to get the larger copies shortly....

William

from Adelaide, Australia

'Oh Boy' growing up oh soooo fast

Jackie a proud young mother with her son William born in January 2004 with a whole world of experiences ahead of them, we all wish them the best and welcome to the rogues gallery :o) Check out Williams web site... go to

"Credits & Links"

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Connor Jenson

Johannesburg

South Africa

Hey, say hello to Connor 7 years and counting, Sonia, his Mum, is currently having fun keeping him in check like any boy of 7 but Sonia, think of this, when he gets older, you will have to keep all the girls in check as well........ ummmm, food for thought.

Ali

from

Minneapolis, USA

Brother Ali is another artist with albinism.... check out the track called "Forest Whittaker" on his new album "Shadow of the Sun" about his struggles living with albinism. He doesn't seem to let this bother him at all and he is a great lyricist. Ali's music ranges from purpose to passionate, yet always soulful and true to the boastful heritage of our culture. An emcee, producer, host and overall party-starter.

Joseph & Jacob

from

Soddy Daisy, Tennessee

USA

Granddad, Alan Ragsdale sent this picture in, of Marcy his daughter and his two grandsons, Joseph 3 and 9 month old Jacob..... ummm! Mum, I think they will be a handful later :o)

ALBINISM COMMUNITY

A chance for people to air their views, debate and to help others with there experiences.... Hope you will contribute and enjoy it. Click forum or...

CHECK IT OUT HERE

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Hailey from South Texas

USA

Hey Dad......

is this cool or what......

Hailey with Dad Jorge, Mum Erica & sis Scarlett

Look you Guys, I know we should be a sleep but we are only young once and it's great keeping you up...... and entertained!

Dad Jorge with the firm arms of the Law around his 2 girls...

Hailey with sister Scarlett

More of Hailey in the Scrapbook

Hey... smiling!

That's what we do best.

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Alison McCordick from Canada		Alison is OCA2 with Nystagmus but is currently in University studying psychology which just goes to prove that nothing can hold you back if you have the right attitude and determination


This is an arty photo that Austin has taken of himself..... cool!		Austin from St Louis, USA

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Danielle has type 1B albinism and is currently continuing her education at the University of New Orleans, keep smiling.......		Danielle Marie Brantley from New Orleans
Danielle as a baby...	a teenager...	and now at 20

	Blade Pelgrave from Adelaide, Australia
Meet Blade born 5th January 2000, Mum Sonia Pelgrave has caught him well with his mischievous smile and the lucky guy has had his picture taken with the Aussie Country singer Kasey Chambers........ mind you, with a little persuasion Blade, we might get one of your Mum as well "nuf said eh!"		Aug 2003
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Yanira Ramirez from Fall River MA, USA
	Loving husband Alejandro Ramirez of Yanira has sent these pic's just after they have celebrated their 1st year anniversary.... good luck for the future Guys.

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	Selima from Tunisia, North Africa
This is Selima, 27 years old and hailing from Tunis, has just finished her degree in Information Technologies and now has been certificated for Business University..... well done from all of us! It will give hope to many albino's that you are able to cope in hot sun of North Africa		Myriam, Selima and Salwa
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	Madallaine Ruiz San Antonia, Texas USA
	Hey Madallaine..... welcome to a brave new world, Born 21st April 2004 and sent in by Michael Burke, a very proud Granddad....... Lets all hope she grows up in a more educated world about Albinism.........	Madallaine conserving her energy and no doubt her lungs with her brother


	Joseph Stumm UK
Andrew and Sarah had Joseph come into there world on the 5th December 1998 and like us have got a web site (see links page) plotting his life...... ummmm Dad,
might have to ease up with the details when he gets to the girlfriend age... if you know what I mean...... had to sign a pact with Bianca re certain secrets.......


	Raina & Isaiah Hoffman USA

	Mum Stacey, is the moderator the web site "BaiChina" which is a support group helping families with adopted children from China....
This derives from a popular name in China that roughly translates to mean white or with a similar meaning...., in China, it is classed as a very positive name. This web site has now grown to over 40 families over the last 3years. Well done Stacey & team........both Raina & Isaiah are 4 years old.... with older brother Dallas who is going on 6........
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	Jaelle Matthieu from USA

T
T

	In the last few years or so we have been in-undated with emails from all over the world, sad, funny, all sorts, we try to answer all your emails and by the most part I think we have succeeded. Some have problems, just need a little support and advice or just want to tell us of their life and experiences....... good and bad! Hey and it's been great! During this period we could not resist seeing the photo's of families and their children with albinism (nosey lot we are) and what started as just one or two pictures is now starting to grow, so much so we have dedicated a page just for this and of course a separate one for our families favourite fury & feathery friends as well, for them just go click 'Animal photos' link. We have enjoyed communicating over this fantastic medium... the internet.... and getting the word put around and hopefully helping as well.... so below is a little insight to some of our friends....